Whenever someone asks me what it`s like to have M.E., I always answer with, "You feel, 'wasted', physically, mentally, and emotionally. With M.E., it`s as if: whatever it is, inside a human being, that responds to outside stimuli, and generates passion, enthusiasm, curiosity, interest etc. has been damaged, broken, or switched off inside the brain. It`s a neurological disease. I call it, 'Zombification'. ME is also referred to as: CFS Chronic Fatigue Syndrome, and also Post Viral Syndrome. However, chronic fatigue by itself, is a common symptom of many illnesses. That`s where a lot of resentment from ME sufferers stems from, in relation to the disease being labled by the by the chronic fatigue tag. Being tired all the time, is a commonly used description used by non-sufferers, but woefully short of the mark. Your description of it is very apt:
tannie wrote:'s one of the most debilitating parts of my various illnesses. Pain, I can work with most of the time (do less, use the hurting bodypart less often etc), but that intense fatigue... Oof. It stops my world... Literally, sometimes I 'lose' a week and don't really notice until afterwards
As for the Myalgic (pain) side of the disease, I`m relatively free of it, touch wood (touches head). Others are crippled with it. However much or little pain they have to endure, apparently, there is never any inflammation to accompany it. It`s not the same as psychosomatic pain though, that`s a different bag of fighting ferrets.
Actually, over the last few days, news has emerged of new research developments. http://www.afme.org.uk/news.asp?newsid=649
I`ll have to go check it out.
Good night Tanja, sweet dreams